[quote=johnny47]Yes, but did your taste buds all burn off as well? The Nurses and Nurse pract. seemed surprised. They had not seen that before.[/quote]
I'm with you on this one....everyone that has seen my tongue goes" Dang look at that..its as smooth as a (fill in the blank)"
To me in looks like a piece of liver. I'm almost 8 months post TX and yes I've gotten some taste back...but...as a guy that LOVES to cook and used to run the KCBS BBQ circut as a judge its killin' me not to be able to taste. All levity aside it is better BUT nothing with ANY spice will work..tomato sauce feels like its pure jalape�o and lord help me if I forget and put some hot sauce on something...YEOW! This all from a guy that would consume 4-6 peppers with a meal and looked at habenero's as only a little spicy....sigh. Hopefully it will come back, maybe not all of it but I keep hoping.


Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010