 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | John,
My tastebuds crapped out after the fourth week of radiation and now, after five weeks, nothing tastes good in my mouth at all. From what I've been reading here, the recovery of taste is wildly variable and it seems that it even changes back and forth during the recovery period. I think the best we can do is hang in there.
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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