OP Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I thought of a couple of things that I should add, which are pertinent to any major surgery:
1. I was able to get some respite from the ICU alarm noises by asking for ear plugs -- they had them, but unfortunately they are the standard kind to block out loud noises, like construction machinery, chain saws, etc. and they let voice-range frequencies like alarm come through, albeit attenuated -- Be nice to find some 'Blocks it ALL' plugs.
2. They constantly hound you to pee enough so that they know your renal system is functioning properly -- Problem is that I have an enlarged prostate so peeing is a problem -- I felt like I should have brought in an excuse note from my prostate doc -- One more item to go on my ear tag next time I have surgery.
I am now taking a series of sessions with a physical therapist for Lymphedema massage to reduce the swelling in my neck, loosen my neck and loosen the scar tissue from the throat-slicing -- I could have used this after the radiation.
Have appointment in couple of weeks to take barium swallowing test -- Still on PEG, but occasionally taking reflexive swallow of water and one med that I don't want to run through the pill crusher.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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