OP "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | I have been hesistant for weeks to address this problem here as I didn't want to scare any newbies. My mom is still having post tx issues. Now, most recently she is finding that pieces of her tongue are freezing up, then dropping off. She is currently in the HBO tx and overall she looks incredibly better! I don't know how to help her. I don't know what to say or do. I am usually a very compassionate person, lately I find myself distant adn scared....and ANGRY!!! I am working again, full time, and feel so out of the loop. At 10:30pm she ussually finds me and just cries, sticks out her tongue, bangs things around. It is becoming hard to bear. I am beyond spent.... my family overall is still having a hard time form this past year, not to mention losing Eddie's dad still hurts. any advice would be most welcome. I have missed all of you, and still pray everyday for you. much love, Donna
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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