Victor,

There are a lot of items on you list that I didn't even know about. So I have been "googling" them.

Today is my 10th rad and my mouth is still OK, but scummy feeling and starting to get a few patches of little bumps along the bottom inter gums.

I am eating and drinking just fine. Water has a bit of a metallic taste.

At night I am waking up about every hour due to my mouth being so dry and sipping ice water, but during the day saliva seem OK, perhaps a little thicker.

I have become a gum chewer and that really helps and it also keeps down the scummy feeling. I image it is also good jaw exercise.

I have been following Margret since she is a couple weeks ahead of me and I see she is now having to rely on her PEG. If I can do as well I have a couple more weeks until then.

I am also hoping to hear what to expect and do once the mouth sores, mucous and pain starts. Just this week the cancer center did have me switch to a soft toothbrush, but they seem to keep just one step a head of things, sparing the details. Probably not wanting to scare me to death.

Good luck with your first Rad



Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11