Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Victor: It sounds as though you have done your homework and are well prepared. I worked and stayed as active as possible as long as possible through treatment. My medical team as well as just my thoughts were as long as I was occupied I was breaking through the issues. Then, as someone else mentioned, I woke up one day and the reality was everything changed. When you hit that wall just remember it's short term and "For the Best". Things are working and you're surviving!! It's a bear of a journey, but a short one in the big scheme of things. I agree with everyone on the Biotene products. I find them to be tremendous and have a standing order on the gum (By the dozen) with my pharmacist. (It's an over the counter product but just to keep it in stock for me). I chew at least a half a pack a day, sometimes more if I'm speaking a lot. It stimulates saliva and moisturizes but also helps keep the Trismus somewhat in check for me. Everyone is different but very similar and it seems as though you're prepared. You are definitely in good company here with people to help you through! Best Regards, Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
|