 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie,
I am truly saddened to hear of yet another battle looming on the near horizon for you. I know I speak for many in wishing there was something I could do to help you. I think that feeling of helplessness is even worse than any type of fear. I will be praying fervently for you and your family that His love will provide comfort and His grace will always be sufficient for all your needs. I also pray for His wisdom and His guidance to your entire medical team that they may develop the best possible treatment plan and carry out that plan to precision so that you may enjoy life to its fullest. I am sending my love to you and to your wonderful family. Though the burdens be great, rest assured that He will always be with you.
God is our refuge and strength, an ever-present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging.
YBIC,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
