Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | Kathleen - I am so sorry to hear how things are going. Please keep up the hope and there are many people praying for you. As we've talked about my husband's initial tumor was in that same spot and we could "see it growing". He did not have the other facial symptoms, but I think he was close. His tumor was wrapped around the facial nerve and the ENT surgeon had to peel it back. The facial issues she's having are from the tumor against the facial nerve. I understand there is always concern when operating to try and save the facial nerve, but it is commonly reconstructed - so even if they do the surgery and the nerve is damaged they will replace it. That was a possibility for us going into Dan's surgery. He described the nerve replacement surgery in depth. This is because he wouldn't know for sure about saving or sacrificing the nerve until he got in there. He was able to save the nerve, but due to the trauma to that nerve Dan does have facial paralysis on that side. It is slowly coming back. Where is your mom being treated? Perhaps a consultation with a 2nd surgeon? Regarding the radiation happening a 2nd time - I don't have experience with that, but others do and hopefully they will respond. Dan is receiving chemotherapy as a radiosensitizer (enhanced the radiations ability).
Good luck - please know that we are always here to listen and help in any way.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
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