Amanda,

Oddly enough, one of the requirements to stay at the ACH's Hope Lodge is that you have a caregiver...they will not let you stay by yourself. Each suite has a living area, and a bedroom with two beds...all the amenities except for a kitchen...that is downstairs (several of them.) I was just blown over about how nice the place was and everything available to the patients and families. No charge and no review of your financial situation.

Re the PEG:

Knowing the stress and physical toll of having the PEG placed pre-treatment in Bill, I would be concerned about doing in in an older patient debilitated by radiation and chemo treatments. I know it is done, but Bill was sore and had all the post anesthesia recovery and I was so greatful that he was relatively healthy when it was done.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill