Amanda - good luck to you and your family through this and my prayers are with you. Our timeline was surgery on 2/4, RO appointment the next week, MO appointment and PET the next week - mask fittings and all that during thi same time frame and then treatment started on 3/7.

My husband is not one to ask questions either and he was just clueless and seemed to not really wnat to know anymore than he was told and had never been through anything traumatic - medical wise nor known anybody who had. Anyway - I specifically asked him what level of info he wanted and we talked about it at lenght. For him I have to provide him info gradually and he only want to hear bad stuff and statistics from the docs. Once they tell him then he will start asking me question. I would take the total candid and honest route with your parents.

This site has been a Godsend to me and I think you are in the right place to help your family.


Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!