"Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Michelle,
Your questions just really exhausted me (lol) and made me revisit my state of mind last July (ugh..it was awful--trying to slug thru all the info and decisions.)
I am choosing to answer a couple of your ??
Re the PEG: Our experience was nothing but positive. My very tough hubby..pain threshold unbelievable...got to the point that he could not eat. We were so glad that we made the decision to have the PEG placed in the beginning (and while they did that they also placed a mediport...wonderful.) I still made sure that Bill would swallow something everyday usually by giving him a small bottle of Gatoraid Rain and saying that he needed to finish by days end. But the PEG really was a godsend and a non-issue after the first week. Bill was able to wean off of it at about week two post treatment.
RE your hubby working: He will probably be able to work full time the first week or two, but after that, I think your expectation is just working from home on the phone. His full time job needs to be getting thru treatment and that alone is hard enough. Bill did work at his computer some but the brain fog that occurs (some folks call it Chemo Brain)and just generally feeling lousy makes work very hard. Bill's voice got pretty gravelly and the mucous would make him hard to understand.
Re constipation: Our MO suggested good ole Milk of Magnesia to clear constipation and then stool softeners...worked wonderfully.
Hope this helps...hang in there,
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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