Michelle,

We are all doing fine, thanks for asking. It was a summer I will never forget and there are still lingering side effects, however they are minimal...and, day-by-day, week-by-week things get better.

The only advice I can give you is to rest up all you can (get sleeping pills if you can't sleep) and have your husband bulk up and eat the most fattening foods he can prior to radiation.

And, while internet research is good, it can also cause great anxiety. So, be careful not to go overboard. Initially, I got very caught up in the statistics. And, that's not anything I can control, yet I would lay awake at night thinking about them.

Other than seeing their dad get sick, from my kids perspective it was probably odd for them to see the pecking order change. It went from the household revolving around them to making their dad's needs the highest priority 100% of the time. Although, I don't think that they would have wanted it any other way.

We had much help from family and friends and when I needed more strength I prayed and I came here to the forum. There have been so many people who have touched my life from this forum in an amazing way.

My kids lives have settled back into their routine. Seeing their dad as sick as he was was not an issue for them. Early on they met Dan's medical team and they learned from them about the side effects and how sick he would likely get. Dan's team also told the kids they were doing what they had to do to "cure" their dad.

My kids never knew the statistics, and I thought that was a bold claim to make. However, when I would ask my kids if they were scared or concerned about their dad's well being, they said they were fine because of what the doctor's told them.

And, if you can believe this, through the treatments and recovery, both kids had swollen lymph nodes and cancer scares, so that just added on to the pile effect of a very dizzying and mind-boggling, sleepless summer and fall.

I had a business too, and am in the process of selling it and returning to the corporate world for a variety of reasons.

Good luck to you and yours, I'm here if you have any additional questions or concerns.


Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.