 Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Lyn, Jim,
Do you guys by any chance have thrush? When I had thrush, everything burned my tongue including water? I also found that I could only drink certain brands of bottled water. Flat ginger ale, black coffee, apple juice, and Ensure Plus were my diet from day 9 of radiation until a few weeks after. You must stay hydrated so drink as much fluid as possible. And as David said, get as many calories per swallow as you can. This is medicine, you don't have to like the taste, just get it down. Here's hoping they find something to control your pain. I can't imagine dealing with that.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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