 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lyn,
Some people have success with a mouthwash they swirl with before meals to numb the mouth and throat temporarily. It didn't work for me though. I think it was called Magic Mouthwash but don't hold me to it and it may not be called that Down Under. Nothing, pain wise, worked for me either so I just found the smallest quantity, highest calorie liquid food source and drank it down at room temp as fast as I could and went back to bed for another hour when I would down 8ozs of water at room temp and went back to bed for another hour and etc. I only had to down 4 cans of food and 4 cups of water a day and it was very tough and I didn't always do it. Of course that just made matters worse so do yourself a favor and get the food and water down the hatch every day and stop talking sooooo much about the pain. I think you're making yourself feel worse. Hell you're making me feel bad.
Hang in there. You can do this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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