OP Contributing Member (25+ posts) Joined: Sep 2007 Posts: 32 | My Dad decided to stop the Amofostine after today . . actually his RO insisted to give him a break. I am curious to see if he will continue with the nausea from the radiation alone. He feels okay about stopping the injection he actually felt a bit better once he read your posts and found out he is not alone with dealing with all of this . . .it is really rough going and it is okay to ask for help and do what you need to do to get through it all. I cried on the way home today because he is getting so down and my Dad is a big joker and is always making everyone feel good. This is something I will never forget . . . it changes you . . . being a caregiver changes everything . . .
I was wondering how a PEG feeding will go when you are nauseous . . . he may have to start this week as he is losing weight.
Thanks again everyone and DONNA I will call you on Tuesday!
Laura
Mandibular ressection, flap replacement and bilateral neck dissection 10/25/07. Two nodes cancerous, others clear. Started IRMT 12/17/07 (34) and ERBITUX ( 6). 7/17/08 cancer returned neck and shoulder area. Passed on peacefully surrounded by love on 9/15/08. And yes, he did see angels. . .
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