Hi Laura and Ted:
Same symptoms here. The Amophostine is tough to handle, but trust me, if he can stick it out they help preserve the saliva glands. I had already lost the right side neck glands so I really wanted to preserve all the rest that I could. I had a great "sunburn" on my neck and up around by jawline, but there were two large pale areas on the ends of my jawbones. My wife asked the oncologist about it and he told her "That's the amophostine doing it's job." The last five shots really added to the nausea but I stuck through them and probably have better saliva for it. Your mucous starts getting thicker about week four as well and it really starts getting tough. It really sucks to get sick and have a closed up throat, nothing in your stomach, and no saliva just that thick mucous!! He's doing the right thing after treatment, get him home and get him in bed. I was always so happy just to get back to the house (What a high light to your day!!). Just keep him positive and get him through it!!! Stay with the shots-I started looking at it like a new challenge. The two gentlemen going through this journey at about the same time I was couldn't handle the shots so I was even more determined. The one guy that usually came out as I was going in (while we could still talk to one another) would smile and say "I got 'er warmed up for you." LOL


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****