I had Amophostine and it really kicked my butt but I'm really starting to get alot of my saliva back. They infused me before every radiation tx. The cancer center I was at had big buckets similar to the extra large popcorn buckets at the theaters. I had one with me at all times. I used the prescription strength Ensure, strawberry and chocolate flavored, in my Peg. I couldn't handle the "baby-formula" stuff, it made me sicker than a dog. There's got to be a better way, don't you think?


DX 6/05 Rt Tonsil SSC advanced to lymph node. Stage 4b. RND, took tonsils, strips off the back of tongue, throat and nose. 19 lymph nodes removed only 1 bad. Once healed, 7 weeks of treatment including 35 IMRT, 7 Cisplatin, 7 Erbitux and 35 nasty Amophostine. Almost 11 yrs out now. Woooo Hoooo!