 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Gary said:
Please - don't play games with your life - GO to a Comprehensive Cancer Center or NCI Cancer Center for diagnosis and treatment.
I can't agree more. As I've said many times, I went to 5 different cancer docs and were given 5 different Tx alternatives with 5 different "estimated survival chances" ranging from a Chemo doc (treated me for cat scratch fever) to a neck surgeon (ND and nothing else and a 50% chance of surviving) to my ENT ( radical ND, chemo and rad and a 60% chance) to Moffitt (no ND, Chemo and Rad and a 90% chance). Back then I really was a lost sole not knowing what to do, where to turn and scared out of my mind. My wife was pushing me to "stop being a baby and have them (my nodes) cut out" but I kept saying no because of the conflicting opinions. I am so lucky I had great insurance and I kept asking questions and searching the web and found my way to Moffitt. Unfortunately, IMO, many posters that I have met since coming here to this site are not so lucky and end up treated at a less desirable facility. I am convinced I easily could have been one of them and it's scares me to this day. I have done a few radio and TV shows locally and I have pursuaded at least 3 off air that I know of to go to Moffitt. I just wish I could reach many more cancer candidates before they perhaps make an uninformed decision.
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Last edited by davidcpa; 01-06-2008 05:54 AM.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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