Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Donna,
I had 3 Cis' 3 weeks apart. The first was before my first Rad Tx and the last was before my last Rad Tx. All were given before I went to the rad room so those were 3 very long days.
I was given a very strong anti nausea med that cost me $100 a pill. I had to take one before each Tx and then 1 a day for the next 2 days. I was told not to let my wife come in contact with any of my body fluids including sweat during the 3 days after each Tx.
I really had no reaction to the first bag but the 2nd bag right before my 16th rad tx hit me pretty hard re nausea. I had a hard time with nausea from that point on so it could have just been me.
I also experienced ringing in my ears but I didn't recognize it at the time. I mean it's not like RINGING in your ears but once you finally recognize it you can see why it's described as "ringing". I didn't recognize the ringing as ringing until after my 3rd Tx and that's when my MO reminded me that he had told me the ringing is actually damage being done to your ears. He said some experience it and some don't. He told me that if I had told him sooner he would have switched me to Carbo P because as he put it, it's just as effective as Cis but without the hearing loss potential. I asked him then why in the world didn't he use Carbo from the getgo and he said that there was more published results on Cis. Oh well, I did end up with some permanent high frequency hearing loss but like many other side effects we have to put up with this cancer Tx, it's not that bad. I would still have preferred not to have the HF loss so if I were you I would ask about Carbo.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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