Sophie:

I know this is a rough time, but it really does get better. I completed my chemo and tx on Sept 27. Mine treatment was for 8 weeks. After 2 hospital stays post-treatment for dehydration, I can now say I am good.

The mocous hung around for about 5 weeks for me. Remember everybody is different. Then came the dry mouth, which is annoying but nothing compared to the mucous.

I also have a PEG tube. Everything goes in there, medicines and liquid nutrition. I do the overnight feedings.

I do get cold easily, but my thermostat is set at 67. I wear a long sleeve turtleneck under my sweatshirt.

Im sure you could use a good rest. I feel very bad that you are going thru this right now. Hang in there.

Your husband needs to take responsibility for his recovery. I got thru this with pretty much no caregiver. Do you have a visiting nurse? I had one come once a week and she was wonderful. I had to depend on my teenage son to drive me to treatments. But, other than that I had no help. I did my own medications, feedings, everything.

Does your husband seem depressed? This is very common after treatments. I do remember the first 3 weeks after treatments were the worst. I pretty much stayed in bed most of the time.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile