Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sophie:
I know this is a rough time, but it really does get better. I completed my chemo and tx on Sept 27. Mine treatment was for 8 weeks. After 2 hospital stays post-treatment for dehydration, I can now say I am good.
The mocous hung around for about 5 weeks for me. Remember everybody is different. Then came the dry mouth, which is annoying but nothing compared to the mucous.
I also have a PEG tube. Everything goes in there, medicines and liquid nutrition. I do the overnight feedings.
I do get cold easily, but my thermostat is set at 67. I wear a long sleeve turtleneck under my sweatshirt.
Im sure you could use a good rest. I feel very bad that you are going thru this right now. Hang in there.
Your husband needs to take responsibility for his recovery. I got thru this with pretty much no caregiver. Do you have a visiting nurse? I had one come once a week and she was wonderful. I had to depend on my teenage son to drive me to treatments. But, other than that I had no help. I did my own medications, feedings, everything.
Does your husband seem depressed? This is very common after treatments. I do remember the first 3 weeks after treatments were the worst. I pretty much stayed in bed most of the time. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |