Sophie,

The radiation has probably affected his thyroid and other areas. Turning up the thermostat is normal, at least it was for me. I could not get warm enough. HOWEVER, my mucositis lasted for close to 4 months. I could only take small amounts of water through my mouth. I tolerated my morphine, fentynal, and other pain meds better, but: (and I'm not trying to be mean) YOUR HUSBAND HAS TO GET HOLD OF HIMSELF AND HELP WITH HIS TREATMENT!

He will get better if he stays positive and active. We all react differently, and I am not trying to be negative, but you cannot do it all. He must participate in his treatment and recovery and you must make him.

They wanted to show my wife how to feed me with my tube. Why should she have to do that, I could stand, open a bottle of Boost, and pour it into a funnel.

He needs to be a little more self sufficient, and you need to not baby him as much.

Sorry, for my rant, BUT HE NEEDS TO FIGHT!


SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.