Dear Sophie
If you read many of my old posts from March onwards you will see Rob and i nearly came to blows over the central heating lol.
Bearing in mind it was spring/summer when he was getting his treatment.

I moved out of the marital bed and into the spare room because i couldn't sleep in the heat he seemed to need all the time,and during the day i walked around in sleevless vests and cotton slacks.
It was unbearable and i thought i would suffocate.Every time i opened a window or door he went nuts,and because of the lack of air in the flat the smell of that damned mucous permeated every where.As well as the heating being on he had a blanket as well,boy was this subject a major issue.

The mucous was a nightmare and when he needed to clear it out, it went everywhere because he had to cough so violently.As a nurse, mucous was something i could never handle well,so this constant expectorating while very tiring and distressful to him ,had me in dry heaves many times.

Others here will tell you the likely duration of the mucous problem although i can tell you at just three weeks out,it will be just about peaking now.As for the coldness i think a lot of it was due to the extreme weight loss Robin suffered as he had no protective layer of fat to retain his body heat,and of course calorie intake produces heat and he didnt eat from February.

As for the rest i am sorry to say it is par for the course sophie,and i admire your stamina and the fact you have been able to hold down any sort of job let alone a full time one.

Some how we keep going ,i survived on three hours sleep for months,and only now since i lost Robin has my body given up on me and i seem to be catching colds at the drop of a hat,and have had a serious chest infection,and my latest cold is heading that way again.

This may sound a very self pitying thing to say sophie,but despite all the exhaustion and frustration,i would rather be in your shoes than mine now, so hang in ther honey,it will get better slowly but surely,and it will be worth it.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.