She needs to get her ENT or even just her GP to order some sessions with a speech/swallow therapist. All hospitals should have these therapists as part of their physical therapy department, or sub it out to a private group. This will help her with her swallowing and tightening issues. She really must INSIST and be her own best advocate. And I hope she starts supplementing her oral nutrition with some liquid nutrition through the PEG. Building up her strength and stamina is so important to this continued fight. Using the PEG to supplement will not keep someone from eating again. It's just a supplement. It just bothers me so to read about someone who is wasting away when they could have help with the PEG. I wish her well and hope she has the strength to be more persisitent about her aftercare needs. I see you are from Gulfport. The Moffett(sp) cancer center in Tampa with U of Fl has an excellent speech and swallow clinic. We hope to visit there sometime next year. My DH is permanently on a PEG(which we are thankful for each day) but we have some hope that they may be able to help him.