Hi Bill, one thing for sure is that you can't be eating normally now due to side effects of treatments and another thing for sure is that if you don't force yourself to take whatever you can, your weight will continue to drop and your body will weaken gradually. It is not a matter of whether you have the desire to eat or not. What you need is very strong will power and determination to eat even though it tastes horrible. I didn't have a PEG either and managed to overcome the oral pain and taste problem and lost 16 pounds (I was rather thin to begin with). You can try something soft and easier to swallow. As a Chinese, my diet is very different from the westerners. I took a lot of congee, cereal in milk, fish, taufou and melon. I mostly took nutritious food that was easy to swallow. You may consider inserting a feeding tube, like the majority of the people here did. This should help you get the nutrition you need without suffering from much pain. I understand that you have more hurdles other than the eating problem but among them, getting nutrition should be the first and foremost one you should address now.
Where there is a will, there is a way!
Karen