Hi Ellen,
and welcome to the forum. His experience doesn't sound a lot different from mine actually (except my oncologist told me I was doing better that most other patients he sees). I lost over 60 lbs. It is a bit early to back off the the pain meds. In the scheme of things it's a fine line between 9 & 10 on the pain scale. They can increase the Fentanyl up to 300 mg - but always in 25mg increments. They have a formula that if he is taking a lot of morphine then they increase the Fentanyl. I also used Compazine suppositories for nausea.

I used a straw to direct liquids away from sensitive areas.

He needs a baby's toothbrush (the softer the bristles the better - and Biotene toothpaste). The flouride treatments I used were pH nuetral and didn't add any extra pain - it was prescription stuff I got from the dentist)

Why TPN instead of a PEG?

The doctors were "blue skying" him. Almost all here have had a month of recovery for each week of radiation.

I did a couple of courses of antibiotics myself - infections are quite common with a "crashed" immune system.

Sorry about his trip to St Andrewes - I golf too. The main thing right now is to survive the after effects of treatment. Take it one day at a time.