"Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Ellen,
Welcome to this site. I'm very sorry to hear what you and your husband have been through the past few months.
One thing I don't understand from your post is how his medical team allowed so much time to pass (from 2/28 to sometime in late April) with no intervention to get his nutrition where it needed to be. I know my cancer team included a nutritionist who checked with me regularly about my intake to be sure I was getting enough calories all through radiation. It's absolutely critical to maintain a set level of nutrients (and hydration), whether by mouth or by tube, and I have to suspect that if he was falling short in this area, it contributed to some of the other effects he is experiencing now.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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