Ellen,

Welcome to this site. I'm very sorry to hear what you and your husband have been through the past few months.

One thing I don't understand from your post is how his medical team allowed so much time to pass (from 2/28 to sometime in late April) with no intervention to get his nutrition where it needed to be. I know my cancer team included a nutritionist who checked with me regularly about my intake to be sure I was getting enough calories all through radiation. It's absolutely critical to maintain a set level of nutrients (and hydration), whether by mouth or by tube, and I have to suspect that if he was falling short in this area, it contributed to some of the other effects he is experiencing now.

Cathy