Ed,

I am elated to hear that you have been cancer free for over two years and I offer my best wishes for you to continue to remain so.

Thank you for sharing your experienecs as we appreciate it and find it helpful.

As I indicated in my preview posts, after tx ended nutrition was about 800 cal intake per day but we brought that up to 1500 and now to about 1800. Hydration has been a problem even thouh daily water intake is about 2 liters plus 5-7 cans of jevity. My family member has sustained three hospital stays for lack of hydration and we can't figure out why his happens.

I will suggest some exercise and hopefully that will bring some energy back.

We buy Robittusin by the biggest possible bottle we can find but dosage remains 2 teaspoons four times daily. What was the dosage in your case? We are not using a dehumidifier.

At the monthly doctors and dentist visits, there is a mouth exam. Both the ENT and radiation oncologist feel that the irritation in the mouth is not thrush but the dentist feels it is and pescribed Nystatin in liquid form.

It was used for about two days and then discontinued because it contributed to the nausea and vomiting. There was an improvement though and although we have been arguing about it I have not been successful in having the treatment resumed. I think I gave up for now but I plan to bring it up at our next dentist visit. How long did it take for you to get rid of the trush?

Again, thank you for your reply and support.

Vin


CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations