Supporting Member (50+ posts) Joined: Jun 2005 Posts: 72 | Vin, I am my husband's caregiver and totally understand the frustration and fear after the treatments end, but the patient's health continues to decline. While I read everything I could get my hands on and knew the radiation would continue to 'work' after treatment, I certainly was not prepared. While Ken was going through treatment, we were 'attacking' the cancer. After the treatments, I felt completely frustrated because I could not 'do something' to help. Ken is three months out from his last tx and is just now starting to improve. There seemed to be two big hurdles we had to tackle - #1) Nutrition. All the vomiting caused by the very thick mucus and constant pain medications was tough to battle. Ken is on a J-Tube (like a PEG tube - but straight into his small intestines). Keeping him hydrated was critical. Ask your doctor about anti-nausea meds that could help ease the constant, nagging nausea. #2) The second and almost more critical problem for Ken (and me) has been severe depression. Radiation sickness is very rough - and it does add to depression.
Hang in there. This is a very long journey - but you aren't alone.
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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