Brian.

Thank you for your reply and sharing your experiences.

I am the primary caregiver and you are absolutely on the point regarding nutrition. Nutrition has been a real fight. Until about a month ago, calorie intake was less than 800 per day and not subtracting for the amount lost to vomiting as Mark has pointed out. Overall, there has been a reluctance to eating on the part of the patient.

The vomiting complicates the issues because in their perspective what's the point. Then after ending up in the hospital and being admonished by doctors about the very low daily calorie intake and having talked to dietician, we have brought up calorie intake to about 1500. The dietician says calorie intake should be 1800+ but we have not reached that level. I ill continue in the struggle to bring calorie intake to 1800+.

The mucus situation and other symptoms like lethargy very much parallel your. There is tons of mucus which induces vomiting and with it loss of precious calories. Also we are still using strong pain killers.

From your reply and the other kind replies I feel somewhat relieved. There are so many caring and wonderful people here that are so willing to help and share their experiences and I am very grateful. It seems that the road to recovery is very slow and painful.

I also appreciate your suggestion with regard to getting a second opinion. We are in the care of CCC currently but there others in the area where we could seek further help.