 Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Some people here have been on feeding tubes a year. The pain could be caused from thrush. I had ulcerations that took months to heal. More than likely it is a side effect of the radiation/chemo. If it were me, I would see an ENT or Head & Neck surgeon and get a clearence from them before I got the feeding tube removed.
Emotionally speaking, this is probably the worst time - be patient, hang in there.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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