I understand your confusion. I'm at a "cancer center" and there's no official guidebook or coordinator. A friend of mine who's a nurse, asked me if there was such a thing as a patient advocate or "case manager" that helps keep track of where you need to go and when. No such thing where I'm at and every department is different.

They sold me on the "team approach" and sometimes I do have to wonder if all the team members are informed sometimes. I know my file is inches thick by now, but sometimes it's like they duplicate the same questions and the same tests.

Now when I was engulfed in treatment, I never thought about asking for the complete game plan, but tomorrow when I go in there, I'm hoping one of the two doctors will tell me what the followup treatment and schedule will be.

Like you, I'm always worried about recurrance etc. and want to be on the constant lookout for cancer, BUT on the other hand, it sure would be nice to make plans to enjoy some life again.

Jen