OP Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Yes, I'd be very interested in knowing what they say. I keep thinking of I were at a major CCC, my docs would coordinate things more. Maybe I'm worng about that.
Oddly, I hardly ever saw my medical oncologist all through the concurrent chemo/rad treatment. In part becuase he IS a well-trained oncologist (worked at sloan-kettering before moving here) and is in high demand by everyone in the area. He has a nurse-practitioner/oncology nurse who is second in command and really knows her stuff and she was who I saw for checkups during my chemo. But then after treatment ended when I had a high fever while I was neutropenic and ended up in the hosptial the med oncologist was great about coming by every day and keeping me informed.
So I felt like he was kind of my main doc for a couple of weeks there. Now I'm not sure WHO is. Except I know I can't count on the RO because he's from Roswell Park and only here 3 days a week and there's no way to get through to him whne the office isn't open.
The medical oncologist has been the one who has done most of the prescribing, esp. of pain meds, which is fine with me but I wonder when/if that switches over to the ENT. It seems like once my bloodwork looks normal again, it should switch to someonme else. It's all very confusing.
But what really concerns me is the ENT is clearly the one best qualified to look in my mouth and down my throat and say if it looks like anything is a recurrence and I want to be sure he does what needs to be done thoroughly!
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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