Betty Jean,

I am really sorry you have to go through this. As you now know, cancer does not stop at the patient but permeates the entire circle of family and friends. If you start a list of questions and concerns/issues, it will help you to organize your thoughts. There is much to learn but it will all come together. The important thing is to know how special you are to take on the role you are taking on and how fortunate your sister is to have you. Please do not worry about letting her down, although this is a very natural thing to feel as you embark on such an unknown mission.

Keep an eye on your sister and depression. Often morphine or other opiates will compound the depression and when you toss in steroids, it can be a real mind blaster for many people. I, for example, can not take steroids because I go through some real tough mental roller coaster rides.

I have been in the role of caregiver for almost a year with my mother and I have seen my wife in this role for many months for me and I know it will be very difficult for you. Take time for yourself; do not be afraid or feel guilty for being "selfish" at times. You will need to recharge and do things for yourself to help you so you can do things for your sister.

My wife has several posts, some in the Caregiver section of this forum. She is Uptown Girl and you can feel free to email her with any caregiver type questions. She knows (as do I) that once we go through this, we can offer so much to others to help pave the road for them. Lord knows it is bumpy enough, even on a good day.

Hang in there and ask any questions you need answers to.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023