Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Danielle, Tell your mom that I still have sores on my tongue and I am 8 months out of radiation. It takes a long time to heal and some of the sores I have now came out months after radiation. I believe that once we start eating "real" food again that we damage the now very delicate inside of our mouth and our tongues, causing the sores/ulcers. At one time the one on the tip of my tongue was the size of a quarter, even a bit bigger. Also, I didn't have any problems drinking water, etc. It was carbonated drinks that I craved and was very excited the day I could drink a Pepsi and it didn't burn my mouth! I'm glad she's feeling better..........it will continue to improve now. Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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