First anniversary party: I asked my oncologist and head & neck surgeon about the survival anniversary date and they couldn't give me an answer. So I chose the end of treatment for my date. In the scheme of things it's only 6 weeks difference anyway. So Friday is my one year anniversary (I'll start a new thread on this on Friday so don't hijack Brett's thread). It's your call Brett.

Mouth pain - yep - samo - getting a little better now. Still have some weird little pains when putting tongue in certain positions. Yawning pain still. Probably fried muscle tissue. I don't worry about it anymore - I just assume it's part of the "new normal".

Thrush: You got it backwards - it's caused by drymouth. And dramatically exacerbated by taking antibiotics. If you had IMRT and are a candidate for some salivary function return be aware it can take 18 months or more. I can't comment on amofostine. I also am not sure about the tongue tint. Mine is pretty much on the white side at this point and I am not having any problems. There is some very thorough information on thrush elsewhere on the site.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)