Hi guys. I wanted to get some input on a couple things I've been experiencing. I'm about three and a half months post treatment now.

* Mouth pain. Specifically it feels like muscle pain in my tongue as well as that old ache on the back of my tongue that is similar to what it felt like just after diagnosis, but before treatment started. The pains come and go. There is nothing consistent about it. Also there inconsistent inflamation and muscle stiffness in the tissue in the front of my neck between my chin and adam's apple. I'm thinking this is all still the radiation doing it's number on me along with narcrotic tissue dying.

* Thrush. I keep reading about this on the forum, but don't really know much about it. Does it cause mouth dryness? I had amifostine injections and my mouth seems dryer now than in the first weeks just after treatment. The back of my throat is terribly dry as well. Is a yellow tint on the tongue a definate indication of thrush? What is the best and least obnoxious treatment for this?

* Is survival measured from the date of diagnosis or from the date treatment ended? I wanted to know when to schedule my first anniversary party!

I'm scheduled to see one of my docs next month and I will certainly bring all this up then, but there is nothing like in-your-face experience as well and I hoped to learn from the rich experience base here. Thanks in advance for your help.

-Brett


Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.