 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bobbie,
I am sorry with all you have to endure that you also have to struggle with a heartless employer AND an insurance company. Remember the insurance company is in business to fight your claim and they are not on your side. As your husband is diagnosed terminal, he may qualify for Social Security Disability if you are not already receiving it. You, too, are entitled to benefits if he is qualified plus any children under 16 in the home. Further, he may qualify for health coverage which would allow you to possibly get reduced rates as Kris mentions below your post. If you need a lawyer to help sort some of this out, the American Bar Association may be able to refer you to one that will take your case pro bono. There is also legal aid based on ability to pay in most cities.
Enlist the help of others for the things you don't feel like you are best able to fight with all you have going right now. And don't let any schmucks ever let you or your husband believe for a second that you have lost any of the respect you have earned in life. They are not worth it!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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