 Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Vickie.
I would feel betrayed too. IMRT is supposed to preserve the quality of life. I had the same condition and the same treatment with the exception that I just had Cisplatin and no HBO. I can't believe that he is having such problems. If you are not already being seen at a comprehensive cancer center - this is the time to get a referal.
What's the deal on the second tumor? Is it in the original site? Is this playing a role in the swallowing problem?
Another small difference - I never had a feeding tube - refused it AMA. Maybe he's been on the tube for so long that he will need extensive therapy to deal with the trismus and swallowing issues. Get a referal to a specialist - don't give up hope. Others here have had similar problems and been able to conquer them.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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