Oh, then you should definitly mention it, so it's on their mind for the future as something to keep an eye on. Or maybe they can give you better pain stuff than OTC. Now with my new diagnoses, I want to feel as good as possible so whenever I have heartburn, headaches, etc. I take something for it.

I'm doing pretty well now, although last week I was laid up for days with diarreah(sorry to be gross!). I thought I had picked up E. Coli or something terrible, I kept calling the on-call people and they thought it was the chemo. But the doctor said it is actually from the Erbitux which I'm getting every week. They are giving me this week off to make sure it goes away.
I've had 5 rounds of cisplatin which is still going pretty well, now it takes me about a week to get over the tiredness. The scans show that the tumors are still shrinking at a slow rate, so I will keep on doing this treatment until they stop shrinking or maybe if they go away I can take a break for a few months. Since the tumor type is so rare, they're not really sure what will happenn so I'm being scanned a lot. I figured after the cisplatin stops working I might have to go to a combination of drugs which will make me a lot sicker. Although after this past week though I am really thinking hard about how sick I am willing to be versus how much time that will buy me. But I'm getting ahead of myself there!
The goods news is I get Thanksgiving week off from chemo and I lost like 10 pounds last week so I will be eating a LOT at Thanksgiving dinner. LOTS of stuffing, pumpkin pie, mm!
P.S. The weather here in CA is nice today- it's in the 60's which we call "cool" wink
Melissa


Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.