My dentist referred me to a maxillo-facial surgeon, who ordered my MRI and did the biopsy, then proposed the seriously radical surgery removing jaw/nerves etc.
When CT scan revealed primary was in lung +node, I was just handed over to the 'chest/oncology' team for palliative care.
Although the jaw tumour has 'settled' to a bearable level over the months, the inside of my lower lip is really starting to bother me.

When I originally went to the dentist in January and he did exam and took X-Rays, he said my jaw-bone (lower right) was seriously thin and exposing a nerve, which was causing the numbness on the outside and the 'men with knives'--intermittent at the time--on the inside.
When I asked what the treatment might be, (before cancer was diagnosed) he said possibly an op to sever the nerve, leaving the numbness, but getting rid of the pain.
My latest Ct in October didn't include my head and neck.
I have been coping with lip/jaw by taking prescription and OTC painkillers, plus using Oragel Max to soothe the 'knife-wielders' when necessary. I rarely look inside my mouth--seems little point, odd times when it 'feels' swollen, inspection has revealed it's not!
Today it hurts like Hell and actually looks swollen.
Anyone know if there's any point in my going back to dentist/asking for re-referral to Maxioll?--bearing in mind of course that in UK everything takes WEEKS--if not months!
Would it be worth it and could anything be done?

Or am I just 'feeling' everything more acutely because I'm desperate to get to CA next week???

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!