Hi Liz, You go girl!!! Be a bloody nuisance and anything else you need to be to get the answers to your questions and make sure his symptoms are being addressed. Learning to be persistent is one of the basic caregiver skills.

It sounds like he has trimsus. Stretching his jaw by yawning movements, slowly opening and closing is good. Jack got something called a therabyte jaw exerciser. They have a website. Is there anything similar that your insurance would cover in England? It's important to keep moving his jaw so it doesn't get worse thru the radiation. If you do a search on this forum and on the homepage you'll get lots of information on trismus.

Interesting that he wasn't upset about the liquid food, in some ways that could take some pressure off. Jack liked Dinty Moore Beef stew all blended up. You can throw a lot of different foods in there. Think things in sauces or gravies. Jack also had problems with spices in his food during treatments so that's common.

Are they giving him any cream for his skin? I have that same blue eye red head fair skin and it does make you feel like the vampires avoiding sunlight. It will complicate the radiation and I would keep asking about that one.

Being tired is also common, and that will get worse. Jack wasn't working thru the treatments and still came home and slept afterwards. These treatments are exhausting and take a lot of energy so it's understandable. Also it's mentally exhausting and sleeping is a way of coping. It sounds like you just need to find a way to balance the nutrition. For us that was me setting up a schedule with target amounts of food and water and hounding him. Some days it worked and others it didn't but we kept at it.

Keep us posted.
Regards JoAnne