Day three and my big strong man is crumbling before my eyes.How the hell is this happening so quickly? What happened to the first couple of weeks that were going to be ok? Robins neck is bright red and sore to touch,the roof of his mouth burns when he eats(which he cant or wont)his jaw is so stiff he cant open his mouth or chew and he is sitting half asleep like a stunned mullet!!!.I have done everything that was advised but nothing prepared for him getting side affects so quickly.He is devestated.He is eating on average 400 calories a day which i know is not enough,and evening meal times are turning into a war zone of cant wont and you must.His total for today being two mini quiche at 12 md and nothing since.At present it is 20.00 and he is asleep.We see the oncologist on thursday,but i wonder if i should ask to see the nutritionist when we go for treatment tomorrow.

I never thought this would actually happen this quickly i feel so helpless and so angry.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.