Hi Liz,
I don't know if it was because of his name or the fact that I have a blue-eyed redheaded sister, but when you said he was already burnt 3 days in I knew he had to be a redhead. He is going to suffer skin damage must worst than the rest of us. I found Biafine to be the best to put on after radiation treatment. Hope it is available in UK.

I also truly understand his moods going cold turkey on cigarettes. I smoked for 37 years and quit cold turkey when dx in 1997. You DID NOT want to be around me if everything was not going well. Since he already has mouth sores, he will not be able to drink. Watch out for thrush. White stuff on cheeks and tongue. Reeks havoc with mouth.

He has to get at least 2000, probably more calories a day to keep weight up. Eating alone will not do it. He needs to drink Carnation VHC or Ensure PLUS or whatever high protein shakes are available in England. He may need a PEG tube but also remember swallowing is important to keep the muscles moving. Treat this as medicine not food. You have to get it down some how.

Sounds like he has has own business. If so, radiation wears you down the further into it you get. So I would not schedule any long term projects for the next several months and schedule longer days at the beginning of the week. Since he seems to be having symptoms early on, maybe he should plan to work only part time or not at all for the next couple of months.

Just some thoughts and remember to take time for yourself. This gets lots worst and Robin seems to getting the worst of it early. We are here for you. Rant, rave and scream. Let him rant, rave and scream. It is a release. Both of you will need it.

Hang in there, we'll get you through it.

Take care,
Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I