OP "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Jam i am a tigress when it comes to my family and i am sure i am considered a bloody nuisance by the cancer centre already! I think maybe where i need to clarify things is 1)Robin has not been able to eat properly for nearly two weeks because of jaw stiffness and neuralgia.I have insisted on appointments with our GP and last week the oncology registrar and apart from saying he should do jaw exersises and that he has damage to his trigeminal nerve,the actual practical help is thin on the ground.He has been taking amitryptizol 10mg at night for the neuralgia but apparently this takes about three weeks to help (if it does at all.)Since his treatment started highly flavoured foods are hurting the inside of his mouth as well(on the roof part) 2)His skin has been ultra sensative since the surgery as all the nerves stared to recover Shaving hurts but he could only shave three times a week at most before the surgery as he is what we in England call an "ginger minger"(an affectionately derogatory term for a blue eyed red head)and a glance of sunshine burns his skin. 3)His mind fix makes meal times a battle and i am a bully.He says you get yours and i will eat later,then he falls asleep and doesnt eat at all. 4)Every morning he gets up full of enthusiasm about the day but once work and treatment are over he justs goes down like a pricked balloon.I want him to get as much rest as possible but i just need him to eat before he goes to sleep!!!How frustrating is this grrrr
We had a chat about it before he went to work this morning and i told him if he wont cooperate then its back to the liquidiser.Strangely he was quite happy with this suggestion as it is the chewing which seems to be the problem area so we will see how dinner goes tonight .He is due to have a full blood work up today and sees the oncologist on Thursday.his weight is now 13stone 10 lbs a loss of 12 lbs so far. His pain meds are now including tramadol at night time which is helping too. when i read this i see for myself that really the radiotherapy hasnt caused much more problems than he had already maybe they just seem worse because of the radiotherapy being added to the mix. Sorry about the date thing Gary i will try to remember to put it in long hand.thanks again for all you help and support.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
|