 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Melissa,
Week 3 post rad was the turning point for me. I stepped out of that damn tunnel for good. I saw a positive difference in the way I felt and my eating habits. I started to drink and eat 3000 cals a day. My energy slowly returned but some days I would wake up just as tired as before my energy came back so don't worry if it happens to you. It happens to all of us for a few months.
I am now almost 6 months post and I am almost back to pre Tx. Taste = 8 out of 10 and dry mouth = 7 out of a normal 10. It seems like this journey has taken forever though.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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