Hi David-
I just asked the doctor and it turns out I had IMRT not XRT. So maybe that makes a difference in talking about how my experience was compared to yours. One thing I noticed when I joined this board is that everyone is very informed about their cancer and I needed to learn more about mine. I always assumed I had XRT becuase there was another room that said "IMRT" and I didn't go in that room.
It's about 1 week now since the treatments stopped and I am exactly the same. The doctor said it would be 10 days to 2 weeks to see any improvement. So I guess that is something to be prepared for(I believe everyone told me this but I just didn't get it), don't go telling your boss you will be back at work in two weeks like I did wink
At least I have the pain under control now with 2 fentanyl patches and then the fentanyl lollipops before each meal. That makes it so I can get down enough food and water. Then in between I feel ok. Watching alot of TV and browsing the internet. From the neck down there is nothing wrong with me!
Melissa


Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.