Linda,
I used to volunteer at CanCare which is located in Houston. They match you up with new patients who have a similar diagnosis for the purpose of giving you support and understanding. One of the reasons that I volunteered is that when my radiation treatments ended (sorry Linda...but it usually gets a little worse after the end of treatments before things begin to get better) I needed a little support and CanCare did not have enough oral cancer veterans to refer me a volunteer who had gone through the same thing. It seems like most men get prostate cancer and most women get breast cancer!
Linda, once you get to feeling better, you might want to consider vounteering at CanCare.(For that matter, you could call them and ask for a volunteer to help you if you ever feel the need.) I also think that you are doing fine. Just keep up those tube feedings and you will get plenty of nutrition. Eating is overrated anyway!!
Take care,
Danny G.
(sadly the only Danny left on OCF these days)