Hey Nicki,
Hang in there sweetie...I know what you are going thru. I cried and prayed everyday for strength and courage to help Dan get thru all of this. Insurance wouldn't pay for the Boost so our Bible study had a Boost party and they all brought us packs of Boost. It was great. However, Dan couldn't get down 8 cans of BoostPlus a day, so I talked to the Nutritionist and she prescribed Nutren 2.0 which had 500 calories a can, so Dan only had to get 4 minimum down a day. Also, since it was prescribed by the nutritionist to our local Neighborcare, it was covered by insurance. They delivered the Nutren and the syringes to our door. I just called and reordered when he was low. The PEG was a lifesaver for Dan, but if Tom is on major meds, get ahead of the constipation and ask for meds for that...we had a couple of really hard days before it got worked out. Hope this helps.

Also, Dan - how did the therabyte work for you? Dan is having some continued trimus problems. Actually, his jaw has tightened even a little more since we have been in Alabama. He can get PT on his shoulder but they really don't do jaws. He is trying tongue depressors, but is having some trouble. Let me know how the therabyte worked.

Nicki - praying for you guys!
Deb