Gita,
It does sound like your sisters situation is an extreme case due to being so close to surgery. I was on only carbo and taxol along with radiation after my surgery and in a much lower dose than I'm sure she's getting for the reocurrance. I had cisplatin, taxol, ifosfomide, and 5fu before surgery. Anything they gave me helped with the nausea. I started taking them before the treatment and continued for 2-3 days after treatment and threw up only once during my chemo. I was on Reglan, Dexamethasone, ABH, and a couple of others. I keep hearing about the great drugs, but now I'm hearing that there were so many that the great drugs did nothing to help. Like poor Ed, I think he got every complication and even added a few to the insert listing!
I was on Ultra-Cal HN with fiber. I never had tolerance issues with it. Someone mentioned 2-Cal to me. I think it has 450 calories per 8 oz can. This guy started it about 2-3 weeks into radiation and actually gained weight on it.
What really irritates me it there's probably not anymore risk for infection with a PEG tube than with the TPN. I have a PEG tube and have since November and have had 4-5 infections with the PEG tube. Part of the problem is me though. I'm still like a little kid, I can't stop picking at it. I'd push for the TPN. I think you get a better variety of choices of formula with that sytem.
I know she'll contine to get better. Keep us posted on her progress. Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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