Hey Gita,
Dan had trouble taking his BoostPlus during treatment so a friend told me to talk to a nutritionist. I did and found out that there are many different kinds of nutrition that can be obtained. Dan started taking Nutren 2.0 and we got it from our local NeighborCare and it was covered under insurance. It had 500 calories a can, so he had to take in less thru the PEG. I hope you can get something via PEG that has much more calories per can. Dan used his PEG for about 6 months, and for about 4 of those months he took nothing by mouth, not even water. So I think that part is fairly normal. I will keep you and your sister in my prayers. Things do get better after treatment ends. Dan was not even able to talk at all for about 6 weeks...that was very hard, but he is talking good again now.

Take care and God bless,
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.